April 02 (Punjab Khabarnama) : Parenting a child with autism spectrum disorder (ASD) — a complex neurodevelopmental condition — can be an incredibly rewarding yet demanding experience. From managing daily routines to ensuring proper medical care, the responsibilities can feel overwhelming. In this scenario, understanding their role in supporting their child’s development and well-being becomes crucial for parents and caregivers.
We spoke with experts to address the challenges faced by caregivers and explore strategies to nurture the well-being of children with autism.
Dr Jaideep Bansal, director and HOD of neurology at Fortis Hospital, Shalimar Bagh, explains that beyond the psychological stress and mental health concerns, parents may encounter numerous challenges that impact their daily lives.
“These include navigating complex healthcare and educational systems to access appropriate services and therapies, managing their child’s behavioral difficulties, and dealing with the financial burden of autism-related expenses. Social isolation, stigma, and balancing the needs of their child with other family members are additional challenges they might face,”
Aashmeen Munjaal, a mental health expert, highlights the importance of early education for parents about autism. Learning about available resources and support services equips them to better care for their children.
Here are some effective caregiving strategies:
- Routine and structure
Dr Bansal recommends using visual aids like pictures or symbols to help children predict and understand daily routines. “Consistent routines with visual schedules and clear communication strategies can improve your child’s understanding and expression of emotions and needs,” he explains. - Positive reinforcement and behaviour management
Dr Ishu Goyal, deputy consultant neurologist at Sir HN Reliance Foundation Hospital, suggests implementing a reward system with stickers, praise, or preferred activities to reinforce desired behaviours. “This positive reinforcement strategy can encourage positive behaviour,” she says. - Fostering social skills
Munjaal recommends encouraging children to participate in social activities and develop social skills.
Dr Goyal elaborates that taking your child on short outings, like grocery shopping, exposes them to social environments in a manageable way.
- Learning and awareness
Dr Bansal emphasises the importance for parents to educate themselves about ASD and understand their child’s unique strengths, challenges, and preferences. “Staying informed about the latest research and treatment options is crucial.”
Additionally, Munjaal emphasises celebrating milestones, no matter how big or small. “Recognise your child’s achievements and hard work,” she says.
- Addressing sensory triggers
“Accommodating your child’s sensory sensitivities can create a more comfortable environment,” says Dr Bansal. “Observe their reactions to sounds, textures, or lights. Provide calming options like noise-canceling headphones, fidget toys, or weighted blankets to help them self-regulate when overwhelmed.” - Prioritising self-care
Dr Goyal advises building a support network of friends, family, and therapists to ensure you have help when needed.
“Schedule time for activities you enjoy, whether it’s reading, relaxation, or exercise. Regularly taking time out from caregiving and prioritising your well-being ensures you have the energy to care for your child,” she concludes.